- The Patient and Client Council can help with complaints about care issues
- Huntington's Disease Association Ireland (HDAI)
Based in Dublin, the southern association are close friends and ever helpful. We hope to develop a much closer realtionship with HDAI and possibly develop some cross-border HD initiatives in the future.
- Scottish Huntington's Association (SHA)
SHA are based in Paisley near Glasgow. SHA has been wonderfully helpful in every way with information sharing and, in particular, in helping us to model this website on theirs and allowing us to use their HD publications and fact sheets which we have adapted for use in N. Ireland.
- Huntington's Disease Association (England and Wales)
Along with HDAI and SHA, the English/Welsh Association has joined with us in a UK and Ireland Huntington's Alliance in order to pool valuable information and resources and promote awareness of HD with a united voice.
- Genetic Alliance UK (HDANI is a member)
- Northern Ireland Council for Voluntary Action (NICVA)
A wonderful one-stop shop resource for charities in Northern Ireland
- The Official Woody Guthrie Website
Woody Guthrie (1912 - 1967) was a famous American folk singer and champion of the working man. He wrote hundreds of songs about all aspects of American life and is revered throughout the world for his music and his socialism. Woody had Huntington's Disease but for a considerable period of his life he and his family were unaware of this. His life story and his work is inspirational on any level and well worth reading and learning about.
- Hereditary Disease Foundation (HDF)
The HDF was started by Dr. Milton Wexler in 1968 when his wife was diagnosed with Huntington's disease. The Foundation uses a variety of strategies - workshops, grants, fellowships, and targeted research contracts - to solve the mysteries of genetic disease and develop new treatments and cures.
INTERNATIONAL HD WEBSITES
- International Huntington Association
The International Huntington's Association is a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease (HD) and their families.
- HD Lighthouse
The HD Lighthouse is dedicated to the latest medical research on Huntington's Disease and is a wonderful source of information and hope.
- European Huntington's Disease Network
- Huntington's Study Group
- Kirton Chairs (specialist seating with a range of chairs suitable for HD patients)
FINANCIAL ASSISTANCE & BENEFITS INFORMATION
for individuals in financial need where grants may be accessed if your need fits the criteria of the various charities that work through Turn2us. The website also has a comprehensive benefits checker facility where you can check what benefits you may be entitled to and how to access them.