The Huntington's Disease Association Northern Ireland (HDANI) was originally set up in 1976 by a group of family members who, in the absence of other accessible resources, desperately needed to provide some peer advice and mutual support for other families in Northern Ireland living with HD.
The association became a registered charity in 1989 and is now a company limited by guarantee with over 100 members from all over Northern Ireland. It's governing body is made up of individuals whose families are affected by Huntington's disease (HD) and highly committed professionals.
The 'Amaryllis', the international symbol of Huntington's disease in the right hand info panel, represents a double image of a head and shoulders as the flower of a growing and vibrant plant.
The reduced size of the inner head and shoulders image symbolises the diminution in a person caused by Huntington's disease. The leaves represent the protection, purpose, growth and development of the Huntington's community worldwide in its search for a cure and treatment.
- Baroness May Blood M.B.E
- Pat McKay - Chair
- Marilyn Kerr - Acting Chair and Treasurer
- Christine Collins - Vice Chair
- Grace Henry - Company Secretary
- Dr Matt Armstrong
- Susan Cooke
- Megan Donnelly
- David Finegan
- Dr Gavin McDonnell
- Paula McElhinney