Access to information and support from HDANI is free and open to anyone connected to HD whether you are a patient, family member, carer or someone working or studying in health or social care.
Service users are welcome to take part in any of our activities, will receive our newsletter or e-zine and be kept up to date with the latest developments in HD.
HDANI is a company limited by guarantee and registered with the Charity Commission Northern Ireland. Following a revision of our governance documents only trustees/company directors are considered members however we aim to keep our service users up to date with the work and plans of the charity and are always seeking their ideas and feedback.
Service user information is stored securely on our online database which is only accessible by HDANI staff.
Your information is not shared with anyone without your permission and any data used for lobbying, fundraising or research purposes is anonymised.